Cure SMA

Recently I attended a fundraiser for SMA – Spinal Muscular Atrophy. Mainly, I was there to take pictures. My friend Cassie has boy/girl twins with SMA. I have known Cassie since I was around 2 years old, we were neighbors for over 16 years. It’s safe to say she is my oldest friend. You can read about Cassie’s twins on her blog here. It certainly puts life in perspective when you see young children, some with feeding tubes, confined to a wheelchair. It doesn’t seem fair and it breaks my heart to know there is no cure for SMA. But Cassie, as well as many other people, are working hard to change that. You can find out more about SMA and how to donate to help find a cure here.

show hide 4 comments

Jill Velicer Photography I pray they find a cure for SMA. What a difficult genetic disorder. I’ll be praying for these children and their parents.

Jessica I also pray they can find a cure…my heart completely breaks for these children…

Laura Girl, is that little boy in the last picture your friend’s son? What a cute little boy – I second Jill’s emotion. Hope and pray a cure is found. So sad that little kids have to struggle with such an illness. Love the photos; especially the one of the sweet little boy in the sunglasses.

Suzzane Brown What a lovely way for you to give back using your talents and the perfect way to spread awareness. I had no idea about SMA but will certainly look into ways to give back myself if any opportunities are around here. What beautiful children and families for their strength through a difficult time!

Your email is never published or shared. Required fields are marked *



There was an error submitting your comment. Please try again.

F a c e b o o k   F a n   P a g e